Registered Charity No 1096361

Welcome to the Gorlin Syndrome Group.

We are a support network offering guidance, advice and information to patients, their families and carers affected by Gorlin Syndrome.  We anticipate that the information contained within the website will also be a valuable resource to healthcare professionals.

The Gorlin Syndrome Group was formed in the UK in 1992 by Jim Costello (now deceased), with the assistance from the Clinical Genetics Departments at St Mary's Hospital, Manchester and Birmingham Women's Hospital, Professor G R Evans and Professor P A Farndon respectively and their staff.  Official Charity status was granted in March 2003. 

The Group is organised by patients affected by Gorlin Syndrome (Nevoid Basal Cell Carcinoma Syndrome) and their families, with support from a team of medical advisors.

Our aims and objectives are to:

• offer guidance, advice and information to those affected by Gorlin Syndrome
• the advancement of the education of the medical profession into Gorlin Syndrome and its implications for the family
• promote research into the causes, effects, treatment and management of Gorlin Syndrome

Contact Information

Address

         

        Gorlin Syndrome Group

        11 Blackberry Way

        Penwortham

        Preston

        PR1 9LQ

        Lancashire

Tel: (44) 1772 496849

Email info@gorlingroup.org with enquiries or questions and comments about this web site. 

Written and produced by Professor P A Farndon, Clinical Geneticist at the National Genetics Education and Development Centre UK, Jim Costello (deceased) & Margaret Costello, unless otherwise stated.
Last modified: 27/08/2008